Welcome To Mended Little Hearts - Southeastern PA

Welcome To Mended Little Hearts - Southeastern PA Upcoming Events and Links

Mended Little Hearts. Little hearts hold big hopes.

Mended Little Hearts, a new support program for parents of children with heart defects and heart disease, is dedicated to inspiring hope in those who care for the littlest heart patients of all. Mended Little Hearts offers resources and a caring support network as families find answers and move forward to find healing and hope.

A Heartbeat

For many parents, hearing the heartbeat of their unborn child becomes their first, loving bond to that child. It's no wonder, then, that discovering that their child has a heart defect, whether diagnosed in the womb, shortly after birth or during childhood, can be devastating.

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Message Board: Join our Yahoo Group for online support OR feel free to contact Carol or Stacy by email.

Coming in the future: Group meetings, group heart walks and a picnic.

 

Become a Member- click the logo above

Click here to join mlhsepa
Click to join mlhsepa

Stacy and Noah

My name is Stacy and I am the mother of 5 children ranging in age from 16 to our heart baby Noah who just turned 1 March of 2007.  Noah was born with Hypoplastic Left Heart Syndrome and Double OUtlet Right Ventricle.  His first surgery, the Norwood with Sano shunt, was when he was 3 days old.  He had the Hemi-Fontan performed when he was 7 1/2 months old.  We are still waiting for his final surgery the Fontan which should be some time next year.  Noah has been doing very well aside from a few small developmental delays.  He is such a blessing to have and we are also thankful for the support and friendship of Carol and her family  during this first year.  Her words and knowledge help us stay at ease during times of surgery and such. 

Feel free to email me anytime!

Carol and Adam

  My name is Carol. My husband and I have a typical child named Emily born in 1998 and Adam, born in 2001, who has Complex Congenital Heart Defects. Adam has had 4 open heart surgeries with his first one being at just 26 hours old. He has had a Bt Shunt, stenosis correction, Bi-Directional Glenn and the Fontane Completion. He was born with out a spleen and also suffered a stroke sometime before 3 months old. Today, Adam is a happy and energetic boy who does karate and enjoys school. Adam's newest issue is a collateral artery that will need to be dealt with in the future. Please feel free to email me at anytime!